Louis is wearing #blueforamc because June 30th is Arthrogryposis Awareness Day! Spreading awareness of Arthrogryposis is important for many reasons including:
Encouraging inclusivity and breaking down stereotypes
Providing hope and promoting community among those living with a rare condition
Sharing treatments and interventions as well as demonstrating the need for more research
It can be tough to live with arthrogryposis for a number of reasons. But Louis is an extremely bright, capable, and perfect human being who is learning how to navigate the world in his own way with the support of his family and friends. He and his family feel very fortunate to live in a time where there are disability rights, effective medical interventions, and broader social acceptance.
"Let's stop "tolerating" or "accepting" difference, as if we're so much better for not being different in the first place. Instead, let's celebrate difference, because in this world it takes a lot of guts to be different."
Kate Bornstein
Louis, you look very handsome in blue!
Louis, ditto your Gigi/Grandma Cathy Lippert.
Much love, Great Aunt Beth (the cool Aunt)
Louie, your happy beautiful smile lights up my day and warms my heart! Love getting these updates and watching your progress. You are such a little champ! ❤️
Dearest Louie,
I love this picture of you celebrating
amc-awareness day. You and your mommy & daddy could be amc’s poster family ❣️ Actually each time I
see your wonderful smile I feel soooo
much joy !!! Thank you for being you !!!
Love,
Grandaunt Conny 😘🌵🌈
My sweet Louie, you are a Survivor and you’re not gonna give up. With your amazing momma and daddy by your side, and your family encircling all of you, your possibilities are endless!! ❤️❤️❤️Love love love you!!!